Links to Shiloh’s Personal sites:

– Shiloh’s story is featured on the website ‘100 Leaders Project’ by Julia Farr and Purple Orange – January 2013.

– An article written by Shiloh on ‘Art and ME’ is in the December 2012 issue of ‘Link Disability Magazine’

– In 2004 ABC TV’s Stateline ran a story on Shiloh, her family and ME/CFS.   Stateline 2/4/2004 ABC

‘Chronically Fatigued’ by David Curnow






– #MEAction and #MillionsMissing (Campaign for education, funding and research)

eMErge Australia: (Organisation for Info and Support)

– Health Rising by Cort Johnson – (Medical Blog and Articles)

– National Centre for Neuroimmunology and Emerging Diseases (NCNED) (Australian Research)

– Turning Straw Into Gold by Toni Bernhard’s at Psychology Today   (Blog on coping with ME from a Buddhist Perspective)

– The Hummingbird Foundation For ME – (Information on ME)

– Change For ME Australia – (@changeformeau on Facebook) (Supporting Neuroimmune illnesses)

– Wonky Pillow Fun Things To Do In Bed – (blog sharing art and poetry)



– ‘Stranger in the Moving Chair’ by Shiloh JA Moore

(Poetry and Art)

– ‘Diagnosing And Treating Chronic Fatigue Syndrome. It’s Mitochondria Not Hypochondria’ by Dr Sarah Myhill (Medical Info)

– ‘How to be Sick,’ ‘How to Wake Up’ and ‘How to Live Well with Chronic Pain and Illness’ By Toni Bernhard (Psychology and Buddhist inspired Self Help Guides)

– ‘Caring For the ME Patient. A HFME Guide’ by Jodi Bassett – (The Hummingbird Foundation For ME – information and support)

– ‘Foggy Frog And The Pain Gang’ by Megan Shartner

(Children’s Book)

– ‘Taking Nothing For Granted’ – by Alastair Lynch (Autobiography)

– ‘Oslers Web: Inside the Labyrinth of The Chronic Fatigue Syndrome Epidemic’ by Hillary Johnson (History of ME/CFS)

– ‘Lost Voices From a Hidden Illness’ compiled, edited and designed for Invest In ME by Natalie Boulton (Display book on very severe cases of ME)



– ‘TED Talk – What happens when you have a disease doctors can’t diagnose – Jennifer Brea’ – (TED Talk Filmed June 2016)

– ‘Unrest’ – (Documentary Directed by Jennifer Brea premiered at Sundance Film Festival Jan 2017)

– ‘Forgotten Plague. ME and the Future of Medicine’– – (Documentary 2015)

– ‘Voices From The Shadows’ – – (Documentary)