Links to Shiloh’s Personal sites:

– Shiloh’s story is featured on the website ‘100 Leaders Project’ by Julia Farr and Purple Orange – January 2013.

http://100leaders.org.au/themes/following-your-dream/shiloh-moore/

– An article written by Shiloh on ‘Art and ME’ is in the December 2012 issue of ‘Link Disability Magazine’

http://www.linkonline.com.au/

– In 2004 ABC TV’s Stateline ran a story on Shiloh, her family and ME/CFS.   Stateline 2/4/2004 ABC

‘Chronically Fatigued’ by David Curnow

http://www.abc.net.au/stateline/qld/content/2004/s1080148.htm

 

 

RECOMMENDED LINKS ON ME/CFS

 

WEBSITES:

– #MEAction and #MillionsMissing (Campaign for education, funding and research)

eMErge Australia: https://emerge.org.au/ (Organisation for Info and Support)

– Health Rising by Cort Johnson – http://www.healthrising.org/ (Medical Blog and Articles)

– National Centre for Neuroimmunology and Emerging Diseases (NCNED)

http://www.griffith.edu.au/health/national-centre-neuroimmunology-emerging-diseases (Australian Research)

– Turning Straw Into Gold by Toni Bernhard’s at Psychology Today http://www.psychologytoday.com/blog/turning-straw-gold   (Blog on coping with ME from a Buddhist Perspective)

– The Hummingbird Foundation For ME – http://www.hfme.org (Information on ME)

– Change For ME Australia – http://changeforme.net/ (@changeformeau on Facebook) (Supporting Neuroimmune illnesses)

– Wonky Pillow Fun Things To Do In Bed – http://wonkypillow.tumblr.com (blog sharing art and poetry)

 

BOOKS

– ‘Stranger in the Moving Chair’ by Shiloh JA Moore  http://byshi.hogfish.net/poetry-book/

(Poetry and Art)

– ‘Diagnosing And Treating Chronic Fatigue Syndrome. It’s Mitochondria Not Hypochondria’ by Dr Sarah Myhill http://www.drmyhill.co.uk/ (Medical Info)

– ‘How to be Sick,’ ‘How to Wake Up’ and ‘How to Live Well with Chronic Pain and Illness’ By Toni Bernhard http://www.tonibernhard.com/ (Psychology and Buddhist inspired Self Help Guides)

– ‘Caring For the ME Patient. A HFME Guide’ by Jodi Bassett – http://www.hfme.org/ (The Hummingbird Foundation For ME – information and support)

– ‘Foggy Frog And The Pain Gang’ by Megan Shartner https://www.facebook.com/FoggyFrogBook/

(Children’s Book)

– ‘Taking Nothing For Granted’ – by Alastair Lynch (Autobiography)

– ‘Oslers Web: Inside the Labyrinth of The Chronic Fatigue Syndrome Epidemic’ by Hillary Johnson

www.oslersweb.com (History of ME/CFS)

– ‘Lost Voices From a Hidden Illness’ compiled, edited and designed for Invest In ME by Natalie Boulton http://www.mcs-international.org/news_lost_voices.html (Display book on very severe cases of ME)

 

TED TALK AND DOCUMENTARY FILMS:

– ‘TED Talk – What happens when you have a disease doctors can’t diagnose – Jennifer Brea’ https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose – (TED Talk Filmed June 2016)

– ‘Unrest’ http://www.unrest.film/ – (Documentary Directed by Jennifer Brea premiered at Sundance Film Festival Jan 2017)

– ‘Forgotten Plague. ME and the Future of Medicine’– http://www.forgottenplague.com/ – (Documentary 2015)

– ‘Voices From The Shadows’ – http://voicesfromtheshadowsfilm.co.uk/ – (Documentary)